Sunday, December 1, 2013

Sunday Night Update On CJK & KAWASAKI DISEASE

Praise God!
This child can rest comfortably tonight.
He has been treated for Kawasaki Disease.
We might never had heard about it 
except for a blogger stepping forward
with information here.

Yesterday he had an infusion to 
treat the disease.

This morning he smiled and said
"NANA"  when I walked in the room.
He does NOT need a blood transfusion.

He felt well enough to take a ride
in the red wagon at his disposal.
Daddy lifted him up to look at the Christmas tree.
And after a few bites to eat he was off to dreamland.
See Spongebob smiling?
He is smiling because CJK is healing.
He has been treated for Kawasaki Disease
and will have to have a few follow up checkups 
to monitor his heart.
Our little boyo should be coming home soon.
Until then, you know that I will be sitting up in the
hospital waiting for one more smile.
Even a half smile like this one will do.
I want to give a 
HUGE THANK YOU
Her son, Grayson, had Kawasaki Disease
and she posted about it- 
possibly saving my grandson's life-
or at least his heart from damage.
She  sent me her phone number
so that my daughter-in-law 
could call her personally.
Where else in the world would you find
people like that?

I have thought at times that maybe I should 
quit blogging-actually talked about it 
with my daughter but decided to 
keep blogging until the end of the year anyway.
I think God has me here for a reason 
and maybe, just maybe, it is to 
help someone else like we were helped.

To everyone-thank you, thank you, thank you,
for your prayers and your thoughts and your tears.
You are the best of the best and I am blessed
to be one of you.
My heart is overflowing and now, so are my eyes.

I will post again tomorrow to give you an update.

your photo name

107 comments:

Michele @ The Nest at Finch Rest said...

Praise be to the Lord on High!

This is indeed great news - what a wonderful Christmas present.

Yes, prayers are heard. YAY!

Bless his adorable little sweet heart. You hug him from all of us in Blogville, Diana. Thanks for the updates.

Big hugs.

Linda said...

What fabulous news....that 1/2 smile must look like a big grin to all of you! It is a small world, you blog and she blogs and you were brought together. Hopefully everyone will sleep a little better tonight. Praise God!

My Garden Diaries said...

This is just AWESOME!!!! I am crying typing this right now! To see your sweet boy in his red wagon is just wonderful!!!!!!! And to know that a group of bloggers can come together when times get tough just says something about this community!!!! I will continue to pray for him...and I will pray that he is home soon for the best Christmas ever! God bless friend!! Nicole xoxo

Sherry @ No Minimalist Here said...

Diana, I remember when Kristin's son was ill with this disease. Your grandson is so adorable and it's wonderful that he is doing better. Prayers were answered.
Hugs,
Sherry

Trisha said...

Simply amazing! So glad to hear that you have an answer and can treat it. I know a boy with this same condition and he lives a very normal and active life. I will continue to say my prayers and I hope you get that sweet smile soon!

~Trisha

Beth said...

Thank God. I am so happy to read your post tonight!! I just know that tomorrow your sweet little guy will have an even bigger smile for you. You all remain in my prayers.

Kristin @ My Uncommon Slice of Suburbia said...

Crying....again! To see him in the wagon is a miracle, what a sweet boy. I am so glad he responded to the IVIG, I am so happy for your whole family, I am thankful for you. OK need to go get tissues, again. Someday I will see you in person and can give you a great big hug.
XO

Nora Miller said...

Well add me to the list of boohoo-ers too! So so happy for your sweet little grandson and your family. Praise the Lord for leading Kristin to you!

Sue

Kathy said...

Praise God for his goodness to little CJK. I am so happy to see him getting better.

Nellie said...

Praise God! Tears in my eyes here again! We are still praying! What a blessing you have received through blogging by having this knowledge passed on to you!

Precious, precious CJK - on the mend!

Love and hugs,
Nellie

~Lavender Dreamer~ said...

I am so glad to hear this good news. When I read what had happened, I was so amazed. Blogging really makes a difference in our lives. We make so many good friends but we also learn so much. My husband and I are both praying. Sweet hugs my friend!

sissie said...

This is so wonderful!
I'm so happy for you and your family.

hugs
Sissie

Judy said...

look at that precious angel...thank you God for answering prayers. Diana, don't you dare think about not blogging! you would truly be missed!

Kim @ Savvy Southern Style said...

Oh, I am so glad he is okay. I am late reading your blog. I know you will be so glad to see him running and smiling again. Take care and so glad Kristen was able to help. The blogging world is a wonderful thing!

Musings from Kim K. said...

I'm so happy and relieved. As a Momma with a child who has ongoing heart issues, I'm so glad you were able to find a diagnosis and the much needed treatment. Praise GOD!

PS. Please don't quit blogging. Each morning, you and Viv are the first blogs I peek at with my morning coffee. I'd be terribly lonely.

ℳartina @ Northern Nesting said...

Such wonderful news my friend...prayers have been answered!

You better not think about going anywhere...I'd miss you!!

Jan said...

AWESOME news Diana...blessings!

Meredith @ The Laundry Can Wait said...

Praise the Lord!!!!!!!!!!!!!!!!!!!!!!!!!! What a breakthrough. I lifted y'all up as I worshipped today. Can't imagine what your family has been going through. XOXO

Betsy@ coastal-colors said...

Diana, praise God! I' thrilled he is better! What an amazing story! Kristen is just the sweetest blogger! This story just gives me chills! I think you have a sign about blogging! Much love to you and your family!

Julie Marie said...

Oh Diana... I have been praying so hard and watching for an update from you... I am so happy your baby boy is on the mend!... and no, you must not quit blogging... you are an angel here on earth and we all adore you... my mama always said the Lord moves in mysterious ways... and sweet friend, this might just be one of those ways... much love to you... I hope you can get some rest tonight... xoxo Julie Marie

The Refeathered Roost said...

Thanking God for this blessing, Diana. Love and prayers to you and your sweet little guy.

jackie collins said...

Praises from above! So, so happy he is getting better! He is such a cutie! And yes, I believe God wants you to keep on blogging... and sharing... and caring... and being you!

Art @ Home said...

Wow, what a praise! I'm so thankful you didn't quit blogging because the information you gleaned from other bloggers certainly helped save CJK from heart damage.

This is such an amazing story, and we'll continue to pray for CJK, his Nana and the rest of your family.

(((hugs))),
Ricki Jill

Something Nice and Pretty said...

Wonderful news Diana, your little man is healing, I went to see Nicholas for their churches St. Nicholas Day...he was so cute. Now Cj will be having a merry Christmas with you all!

Vee said...

So glad that things are looking up! So grateful for this community of Blogdom and you are an important part of it.

Debby said...

Those cheeks. Could he be any cuter, I don't think so. So glad he is better. What a miracle came out of a blog post. Diana, do you know how you would be missed if you stopped blogging. You are like the Welcome Wagon Lady of the blog world.
My little guy is home but attached to an oxygen tank. Wish we didn't live so far away from him Get some rest.....so glad about the baby. xo

joanne said...

he looks wonderful!!! I am so happy for your family and the little guy. Thank God for bloggers and their generous hearts. Still praying, so thankful. take care...

Sherri B. said...

Praise the Lord!!! Thank you so much for letting us know this great news. Isn't our God good and He sure does work in mysterious ways. It will sure be wonderful to get your sweet little guy home. xoxo

Mindy said...

My eyes are welled and my heart is full. I am SO happy to read this post.

camp and cottage living said...

I don't think you'll be able to keep him down much longer, Diana!
Please don't leave the blogging world-sometimes you are the only laugh I have in a day!
I love your wit and genuineness:>)

Jane@Bluebird1959 said...

Talk about divine intervention! Such wonderful news for your sweet little guy and family. Like others, we love what you add to the world of blogging....it would not be the same without you. Jane

Linda @ Itsy Bits And Pieces said...

OH this is such a happy post, Diana...what a sweetheart he is! I'm so glad he is doing better and will go home soon! Praise God!

Margie said...

I am so happy for your darling little grandson....I love watching your blogging dear.

Sharon said...

Praise God your Grandson is on the mend What an incredible story as to how they figured it all out! Now please don't stop blogging, I just found you!
Sharon!

Renee said...

I'm so glad they found out why he was so sick. I've taken care of many kids with Kawasaki's Disease. Scary when you don't know why a child is so sick. But he looks good in that pic. I hope his recovery will be quick and he will get to go home soon. And hugs to you.

Teresa said...

Prayers answered! Thank God that she is someone who reads your blog! I am so glad that he is doing better! He looks tired, but happy in the pictures. What a beautiful little boy!
I hope you don't give up blogging. We would all miss you so much.

20 North Ora said...

Thanks so much for keeping us informed about that precious baby! God is so good.

Judy

Maryjane-The Beehive Cottage said...

Oh Diana, what a miracle! Heavenly Father hears our prayers! xox

Magali@TheLittleWhiteHouse said...

Dear NanaDiana,

I just read on somebody else's blog that your grandson was sick and I had to come and send you a few kind words. I'm relieved to read he is better and I hope he'll keep smiling more and more.

Magali

Cindy (Applestone Cottage) said...

So so happy to see him doing better Diana!
Bloggland is an amazing place! Wow oh wow, this story is amazing.
Prayers answered.
Hugs,
Cindy

Kirby Carespodi said...

So glad the doctors now know what to do to help him! Please keep us updated!

Zoey said...

what wonderful news. A Christmas miracle!

Anonymous said...

The joy at reading this news has actually moved me to tears. I am so pleased CJK is responding to treatment, what a star Kristin is. I hope your grandson goes from strength to strength.

Ron said...

It is great seeing him smile yet again. What a relief it is to know the cause and the correct way to treat it. Amen!!!!! xo

Amber said...

Thank God! I am crying because I am so glad he is doing better. Continued prayers, Diana. xoxo

Liz@ Infuse With Liz said...

I'm so happy for all of you. Seeing his sweet face is a treat. Hooray for the miracle that blogging has brought in your life!

Kay G. said...

Thanks be to God!
And I am crying as I write this, thankful so much for all of it, the woman who wrote about her son, the woman who told you about her blog and YOU for taking the time to listen! God bless all of you. Praying for your sweet grandson. Love, Kay

Melanie said...

Thank you for sharing this update and praise to God! You will each remain in my prayers! Please don't stop blogging! Love reading your blog, you make us feel like we have been your friend for a long time. I like that!

boopnut said...

I have been praying for your grandson, and am so glad they found a diagnosis! Praise God for how he puts the right people in our lives at the right times!
Hugs,
Deb

Celestina Marie said...

Diana this is all such good news. I am over joyed for you all. God has worked in this trial and saved sweet CJK. I am so thankful for the bloggers who God placed here for this miracle to happen. Everything has a reason and it worked for the best outcome. Love the sweet pics and the smile on the face of such a precious little guy. Thank God!!!
Prayers continue and blessings to you all.
Big Hugs

Maria Elena said...

Praise God! So happy to hear he is doing better! Sending you my love. Maria

Debra at HOMESPUN: http://www.thehomespun.com said...

Praise God from whom all blessings flow ...look at his sweet little half smile :) Happy Tears here :)

Simply Linda said...

Praise God!! Will continue to keep you in prayers.

Sylvia said...

Praise God for answered prayers, so thankful! Will continue to pray.

Susie said...

Diana, God is good. So are bloggers. Much to be thankful for now. Good to see little CJK awake and getting well. Bless all of you, xoxo,Susie

Katie Clooney said...

Thank God, they found the culprit. Hope he continues to get back to his old adorable self!!

Kathy @ Creative Home Expressions said...

I'm all teary here, Diana, but in a good way. I'm so, so glad that there was an answer to what was going on with your grandson. He looks like a little trooper, too. I bet everyone {including him} will be glad when he is home.

Victoria's Vintage Designs said...

Oh Diana SO glad to hear this news!! Will continue to keep your grandson & your family in my prayers!! Blessings... Vicki

Karen said...

UGH! Just catching up with you, SO glad to hear your grandson is going to be OK, never heard of that disease, glad you've figured it out and he's gotten the right treatment.

sparkle100-havealook.blogspot.com said...

Praise the Lord and all the people say. Amen.


We are to pray and leave the rest to our Heavenly Father that is all he asks of us. We all did.

Praise the Lord for whom God sent to your bog to tell of this disease I never heard of.

Our Lord does work in mysterious ways and he uses people whom he knows is the right one.

I have never hear of that disease so it is an awakinging for me and all.


Your Grandson spoke your name . How wonderful is that.

I thank the Lord for your doctors and the staf and the caregivers in that hospital taking care of your Grandson. Again Amen.


Love you Di.

You have great prayer warrior's.

We love you and your family and your darling beautiful Grandchildren.

You and your hubby and family have touched our hearts many times.That is why we always come back to your blogs.

God said the most important is when you LOVE each other.

Us bloggers sure do that.
Hugs xxxoooo reaching out.

Patty Patterson said...

I'm so happy that CJK is doing better. This post brought tears to my eyes and I am not even an emotional person. And yes - I think God must have you blogging for a reason. And your blog got the word out there so that Kristin knew about CJK and could send you information. What a miracle.

living from glory to glory said...

I am overjoyed! I know the fear that comes with seeing our wee ones sick and not able to tell us what is wrong! Or in this case the Doctors not knowing what was wrong. I know God's timing is perfect! I have been blessed by many blogs, and I always hope to encourage others! But at times I think it may take up some REAL time of my life and days.
But that to needs to come from His direction.
Love YOU!!
Roxy

Simply LKJ said...

Praise God indeed! I am so thankful for the "nudge" he gave me the other night after I had already commented, leaving my prayers for CJK. However, I felt Him nudging me to say more. Then, it hit me as I was talking with my youngest. Kristin!! Something she had written when Grayson was ill just clicked with something you had written. God truly brought us all together, and for that I am so very thankful. It is so wonderful to see that sweet little one smile again. God Bless!!

Tessa~ said...

Just had to tell my husband about this whole amazing and wonderful happening. How Blogging can be so, so, so, so, so wonderful. Which he completely agrees with, of course.

Happy-happy-happy-happy-happy-happy-happy-happy-happy-happy-...

Gentle hugs,
Tessa~

Donna W said...

Wow, this is truly a miracle, Diana, and an answer to prayers! I'm so, so thankful that the blogger reached out to you, it is just amazing how this was discovered!! I think you could write a book about all of this, the power of prayer. Who knew it would come in the form of blog land? It fills my heart with joy to see your sweet little grandson smiling and on the road to healing! You are all in my prayers, big, big hugs!
love you!!

Junkchiccottage said...

Diana,
It is so good to see that little handsome man feeling better. What a wonderful little miracle you received. He is truly blessed to have his Nana and what a wonderful way God put the answer in your court. Such a beautiful outcome. Hugs
Kris

ImSoVintage Laura Walker said...

Oh Diana, this is the most amazing news. Blogging is such a wonderful way for us to share and receive information. I will continue praying for a rapid recovery for your sweet boy. xo Laura

Ann@A Sentimental Life said...

So glad all the prayers were answered...will keep praying!

Jen @ Muddy Boot Dreams said...

Absolutely wonderful news I am so glad that they have figured it out, and that the little one is getting better.

Jen

Lucille said...

Dear Diana! I am just so happy and relieved that everything turned out well. How you must have suffered emotionally from this trial! Our Lord is good! Such a sweet child is that little boy!

Art and Sand said...

I have not been blogging or reading for several days and actually thinking about stopping blogging also. And then, I read this and it confirms that blogging has a wonderful purpose of bringing people together.

I am so happy that the little guy is doing well. Who would have thought that someone's comment on a blog would be what saved him.

My thoughts are with your family.

My Grama's Soul said...

Oh Diana......what a wonderful post. It actually sent shivers down my spine. It just shows that we all are truly connected in God's special way.

Although I'm no blogging right now just wanted to stop in to check in on that beautiful grandson of yours.

xo

Jo

tammy j said...

this is the best christmas present you could give us.
he is absolutely BEAUTIFUL.
and someday because of his nana's blog . . . he will know how many people were literally holding him up in their thoughts and prayers day and night.
it has been tense. and if i have felt such tension . . . i cannot BEGIN to imagine the tension you and his family have been living with. thank you for keeping us up to date in this hardest of times.
we love you!
xoxo

Dixie Delights said...

A true miracle! God had his hands on this - how amazing that Kristen was able to help you - someone you probably never would have known! I do think you are here for a reason... we all are! You bring a smile to my face every single day.

Faye said...

What an awesome story this is! I am so glad you do blog! I'm so happy he is feeling much better and on the mend, all smiles and happy again!
Don't you dare quit blogging! You are one of the funnest (is that a word?) bloggers out there. I'm sure we would all miss you too much!!!
Hugs!!!
Faye

Red Rose Alley said...

Diana,
I'm so glad to hear that your Grandson is doing better. When we were all at the Thanksgiving table, we said a special prayer for this sweet child. You have so many special blog friends that are extraordinary, and many are women of faith. May God bless them as well. You will be singing a joyful song this Christmas, Diana. And I am so thankful for your friendship.

Love,
~Sheri

Chatty Crone said...

What a fantastic blogger friend - I know God must have sent her.

His little pictures just tore at my heart.

I am so glad his is okay.

Wow!

Hugs and prayers. sandie

Susan EvelynAndRose said...

So happy to hear CJK is doing better, Diana! Oh gosh, those adorable little cheeks, what an angel as he sleeps. I'm so happy to hear that the prayers continue and that he is healing. Thanks be to God!

Judy at GoldCountryCottage said...

Oh, Diana. Thank God for the good news. I posted about it today but maybe was a little behind the good news. I will leave it in anyway and I am so happy for you all..Happy Monday (because it is).Judy

Anonymous said...

Beyond happy to hear the good news, Diana. I actually remember Kristin's experience with her son. The blogging community is so special.
You and your loved ones just received the greatest Christmas gift. Enjoy!
xoxo's

Tina@WhatWeKeep said...

I'm so happy that your little sweetie is doing better. It's so true that the sharing that we do here can be miraculous. We all cry with you and for you, Diana...you just keep watching for those smiles. They will come! Love to you and your family.<3

Richella Parham said...

Oh, praise God!! I am so very, very glad to read this, Diana! So good to the smile on his face and to see him looking like the Charles in Charge that we've come to love because he's your beloved boy! Bless you, sweet friend!

Pam Kessler said...

How wonderful to see him up and feeling better! Isn't that amazing that you found the answer through your blog. I have no doubt that you blog for a reason. If just to make me laugh and cry and pray (because you know I've prayed for more people since I've read your blog than I have in my entire life and that's a lot of years). Hope the little guy and Spongebob get out of the hospital soon!

Gypsy Heart said...

Praise God!!! I'm thrilled beyond measure to know he's healing. These grands are so very special in our lives!

My computer is sick so I may not be around much...using one in the apt business office right now. I wanted to check on this precious boy and this post makes my heart smile!

Bloggers are incredible people that we have been so blessed to "meet".

xo
Pat

lynn said...

thank goodness, diana! we are all so happy to hear this! and no blood transfusion-- that is wonderful!

sweetvintageofmine said...

I just Thank God and give him all the glory!! He uses those around us and hears our prayers!! I'm so happy and relieved for you and your family....I believe everything is going to be alright....Blessings~~~Roxie

GARAGE SALE GAL said...

PRAISE GOD
PRAISE GOD
PRAISE GOD...
and I am glad that you are going to keep blogging :)
Warmly,
deb

must love junk said...

Diana, I haven't been around and just read about your grandson! I'm so thankful that he was diagnosed and on the mend!! What an amazing blessing!
Susan

Chris K in Wisconsin said...

Prayers coming from Sauk City. Miracles do, indeed, happen. This is a Christmas miracle for sure. May the little one get stronger each and every day. Be sure to take care of yourself, too!

Angela Ryder said...

Oh gosh, Diana! Thank God for this blessing! I'm so thrilled for your entire family. HE works in mysterious ways and HE always amazes me how he does it! Much love your way!~~Angela

Cheryl ~ ZanyMayd said...

Amazing ~ Thank You, Jesus!
xox
Cheryl

The Polka Dot Closet said...

Oh Diana I am so happy! When all calms down and your sweet baby is home and you have slept for a week. I would love to hear the story of how you told the Drs what to check for and what their reaction has been on his miraculous recovery due to a post on your blog! You will Sleep tight too!

XXOO Carol

Wendy@Once upon a rose haven said...

Hi Diana,
I'm so happy to read the good news about your adorable grandson. May God's healing power and comfort be upon sweet CJK.
Blessings,
~Wendy

And the Prayer of Faith will save the sick, and the LORD will raise him up! James 5:15

"Cottage By The Sea" said...

What wondrous news! I am so glad he is healing and that smile, that smile is a miracle - a beautiful, hopeful sign. Don't you ever think of not blogging any more. What would we all do without you?

Heather Lindstrom said...

All things work together for good......what a blessing and such a relief. Such wonderful holiday news for you and your sweet family.
xx, Heather

Cheryl @ TFD said...

Praise God!! Just awesome news! And what a blessing to have a blogger recognize the problem and alert you!! I pray that your precious little guy will rest comfortably and heal quickly so he can go home. I'm so happy for you and your family...take care!
Hugs,
Cheryl

Botanic Bleu said...

Diana,
So thrilled to hear that your grandson is getting better. Yes, I believe that each of us can make a difference in lives of others by the choices we make and the encouragement we give each other. You have always been so encouraging to bloggers with your wonderful comments. You would be missed if you choose not to blog.

What a wonderful holiday blessing your family has received.

Judith

Lori said...

So happy and grateful! Do they know how it is contracted?

Creations by Marie Antoinette and Edie Marie said...

God is a miracle worker! I've seen it with my own eyes over and over again. And he is giving your boy-o a big dose of miracle! I am praising God for the progress your grandbaby is making and praying it continues. The connections we make through blogging is life changing. I'm so happy there is a place where we can help each other!

God bless you and yours always, Edie Marie

BRASWELL said...

what a miracle took place in his/your life. Gratitude to all bloggers out there. xxpeggybraswelldesign.com

Sandy at You May Be Wandering said...

What a miracle! The blogging community never ceases to amaze me. Thank you for sharing this heart warming story - it gives me hope in this crazy world. xoxo

Gayla said...

This is possibly the most exciting news I've ever heard about blogging! I'm just floored! So excited and happy for you guys. What a sweetie! Hugs!

Sharon @ Elizabeth & Co. said...

All I can say is WOW - how amazing is that!

susan@avintagefarmwife said...

Isn't that something? There are sooooo many nice people in our world! So glad your baby is improving!

Amy at Ms. Toody Goo Shoes said...

I'm so behind in my blog reading, but wanted to start with you to see how your little grandson was doing. I am so happy to see that he is doing well! What a miracle to have another blogger figure out the answer!

Cristina Garay said...

Oh Diana, how happy I'm to hear these great news! Isn't that amazing? What a great community is this! Big hugs to CJK and to you my dear friend :)

Thistle Cove Farm said...

Oh Nana D...just read through your posts to find THIS ONE! Praise God for His goodness and mercy to your grandson...this is wonderful news and I am happy w/for you!